As many as 90 percent of individuals who have a parent with Huntington’s disease (HD) choose not to take a gene test that reveals if they will also develop the fatal disorder — and a new study details the reasons why. Understanding the ”why” matters as new clinical trials testing therapies for people who haven’t yet developed symptoms of Huntington disease requires participants to be tested for the HD gene to be included in the trials.
Why adults at risk for Huntington’s choose not to learn if they inherited deadly gene
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